About Me

A hilarious view of life with multiple autoimmune disease and chronic illness. Lupus, Dermatomyositis, Myositis, Alopecia, Raynaud's Syndrome, Sjogren's Disease, Depression & Anxiety. I have it all and have learned to not only accept what come my way but to see the humour in all that life has to offer. If you know someone struggling with chronic illness please refer them to this blog. My hope is to brighten the days of those who need it the most and give hope that there is still a beautiful life to live even if it may be a little bit broken!

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Cover Your Eyes!  This is Not The Archie Comics I Remember!

Cover Your Eyes! This is Not The Archie Comics I Remember!

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Good news!  Visited the Rheumatologist and Neurologist this past week and they both confirmed that my strength has almost doubled this month so I can try tapering down on my dose of Prednisone more quickly.  This is great news for my face which is exploding to the size of a large pumpkin.  From what I have read I can’t expect the swelling to go away until I am under 10 Mg of Prednisone, which is still a ways away for me but at least I am heading in that direction.  I had a meeting with my business partner whom I haven’t seen in person for a couple of months.  Brigida and I met him at the second cup and the second he saw me he said “Oh my god, I don’t even recognize Theresa anymore!!!”  LOL  Some of you may find that to be insulting but I thought it was refreshing as it is completely true.  I also don’t recognize myself anymore.  So I just laughed and said “I know, right, my face is enormous!!!”  Brigida, on the other hand, wanted to kill him and pointed out that it was the steroids and that I was VERY sick!!!!  You can always count on your friends to have your back but he really was only pointing out the elephant in the room and the elephant in the room was my enormous face!!!  Most people try to be very nice about it and say they don’t notice a difference which I find hilarious since I look like a cabbage patch doll.  This is probably the most self-conscious I have ever felt about something but I am doing my best to just get over it and get out there anyway.  The doctors are also trying to taper me down fairly quickly as my body has just had enough of these drugs and I have been passing out fairly frequently.  Last week I found myself flat on my face in the kitchen and on the stair case and I even took a header in my bedroom landing right in the laundry hamper.  It only happens though when I am standing making the doctors think that something is up with my blood pressure or heart, most likely as a side effect of all of these poisonous meds.  So I need to head off for some tests on my heart and I will need to spend a few more days strapped to a heart monitor, which sucks as I have already done all of this just a few months ago.

 

This week a new TV show started called Riverdale.  My kids love to read Archie comics and this show is based on those characters and the town of Riverdale.  The kids were so excited to see it and PVR’d it so that we could have a family night this past weekend watching the show in our Jammies and munching on popcorn.  On Saturday we got ourselves all set up in the family room and tuned into Riverdale.  OMG!!!!  By the end of the show I was traumatized!  This was not the Riverdale of my youth with sweet Archie, Betty and Veronica!!!!  To start, Archie was not interested in taking either Betty or Veronica on a date to the Chocolate Shop but instead had a hot affair with his teacher Miss Grundy in the back of her car.  What????  That was followed up by Big Moose finding a dead body in the forest while he was sneaking off to have a gay fling with a new character named Kevin.  In addition, Betty and Veronica share a make out scene in attempts to spice up their dance routine to get onto the cheerleading team.  I spent the whole show yelling at my kids to cover their eyes while they all giggled hysterically.  Now I will admit the show was pretty interesting but pretty shocking when you are expecting to watch the Archies!!!  When the show ended my kids were all like “Wow!!!  When is the next episode on!!!!”  Good grief, so much for a nice wholesome family evening of television.  I do recommend the show if you are a fan of 50 Shades of Grey but I DO NOT recommend it for a nice family show to watch with your children.

 

On Monday my business partners and I had a meeting with one of our lawyers downtown.  I have come to learn that as your company grows the amount of lawyers that you have working on various projects also grows.  Right now we currently have four lawyers working for us on different projects, each specializing in a different area.  It can be a little overwhelming keeping all of the necessary legal components in order and I am very thankful that we have a team of lawyers that not only care about us and our company but who are great at keeping everything organized and under control.  Now the cost of this team is through the roof but they are well worth the money spent to keep us protected and on the right path.  We were visiting one of our lawyers for a meeting in a large building downtown.  Brigida and I were running late and, in our hurry, neither of us thought to look up what floor the office was on and we had not visited this law office in almost a year.  I would like to tell you that we were running late because we were held up in an important business meeting but the truth was we were late because we had stopped to grab Egg Sandwich Bagels at Tim Hortons.  We wouldn’t want to have to sit through a long meeting with our tummies growling, that would just be unprofessional!  So we were rushing into the elevator and didn’t realize until it was time to press the button to bring us to the correct floor that neither of us knew which button to press.  Brigida vaguely remembered that it was a number in the teens so she hit 14.  When we go to the 14th floor we both jammed our head out into the lobby and “Nope” it wasn’t that floor.  So we hit the 15th floor and “Nope.”  This went on for a few floors at which point Brigida turned to the delivery man who was in the elevator with us and said “oh man, you are going to get really annoyed with us.”  He was waiting to get out on the 23rd floor and yes we continued to stop and check every single floor from the 14th to the 23rd.  He was pretty cool about it though and just laughed, sighed and sat down on the box he was delivering to rest his legs as he waited for us to check each and every floor.  He even tried to convince us to not check a few levels as he was certain that those floors were Bell Canada but we insisted on checking just in case.  When he got out on the 23rd floor, Brigida then claimed that she had a vague memory of it being the 27th floor so we skipped floor 24 to 26 and headed up to the 27th floor.  When we arrived this was not it but another man entered the elevator and we asked if he knew where Kelly Santini’s office was and he said it was on the 24th floor!  “You’ve got to be kidding me,” it was the floor we had just skipped.  So we headed back down and finally arrived.  Our excuse for our tardiness was that the construction in their parking lot had held us up.  I just hope our lawyer did not smell the egg bagel on my breath and did not hear us shouting in the elevator shaft.  Always an adventure to be had in this beautifully broken life!

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About Me

A hilarious view of life with multiple autoimmune disease and chronic illness. Lupus, Dermatomyositis, Myositis, Alopecia, Raynaud's Syndrome, Sjogren's Disease, Depression & Anxiety. I have it all and have learned to not only accept what come my way but to see the humour in all that life has to offer. If you know someone struggling with chronic illness please refer them to this blog. My hope is to brighten the days of those who need it the most and give hope that there is still a beautiful life to live even if it may be a little bit broken!

Stay Connected

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