About Me

A hilarious view of life with multiple autoimmune disease and chronic illness. Lupus, Dermatomyositis, Myositis, Alopecia, Raynaud's Syndrome, Sjogren's Disease, Depression & Anxiety. I have it all and have learned to not only accept what come my way but to see the humour in all that life has to offer. If you know someone struggling with chronic illness please refer them to this blog. My hope is to brighten the days of those who need it the most and give hope that there is still a beautiful life to live even if it may be a little bit broken!

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What Are You Lazy???

What Are You Lazy???

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The Dermatomyositis diagnosis meant a fast trip back onto Prednisone and Methotrexate.  The doctor explained the side effects of such massive doses to me, which all sounded bad but I really stopped hearing anything after hearing the part about the massive bloating and weight gain that I could expect over the next few months.

Weight loss has ALWAYS been a huge struggle for me and the thought of putting on massive amounts of weight and blowing up like a beach ball sent me into a panic attack.  I could lie and say I bravely faced the idea with a smile on my face but the truth was I cried really hard, ugly cry with horrible gasping sobs.  I then followed every other sentence for an entire day with the words “…oh and by the way I’m going to get really fat soon.”  Like “Did you remember to call and book the dog in for his grooming…oh and I’m already feeling myself getting fatter!”  I phoned my parents and cried, I complained to my brothers, I whined on social media and sobbed at my best friends.  Now some of you may point out that I don’t exactly have a slim physique to lose but even those of us who are carrying around a few extra pounds do not want to put on massive amounts of weight because of a drug that makes us feel like dirt and I had already put on 15 pounds in the past three months simply because I was unable to move or do anything other than eat and comfort myself.  I gave myself a day to mourn and then I did what I try to do when dealing with any problem that I have to face; I put my emotions aside to come up with a solution.  I decided that I would put on my big girl panties, join Weight Watchers and nip this problem in the bud before it even got started.  This sounds simple, but not really as the Prenisone literally has me craving food and fighting off hunger pains like I am a werewolf that has not eaten in a week.  I have even considered chewing on paper at this point just to stop the growling and gnawing pain that stays with me pretty much all of the time.  The Weight Watchers program just keeps me in check.  When I have eaten all of my points for the day I then just suffer for the rest of the evening and my family, friends and social media buddies then get to listen to me complain since complaining loudly does seem to help.

I didn’t want to join Weight Watchers on my own and I am learning quickly that when you are in a bad spot you can pretty much convince your best buddies to do things that they normally may not be so willing to do.  So when my best buddy, asked “How can I help, I really want to help, can I cook for you?” I pounced!!!!  “Nope!  But you can come to Weight Watchers with me so I don’t get so fat that I explode!”  Trapped!  There was no way she could say no and I reeled myself in a weight loss support buddy!

So off we went that first night with my best buddy and her two 6 year old twins in tow.  Before we went she had explained to her children that we were signing up for this program so that we can lose weight.  This was of great interest to her son and he watched excitedly while his mom paid for her program and got onto the scale for the initial weigh in.  When she got off the scale his face immediately dropped and he loudly whispered “why did you pay that lady!!!  She didn’t make you skinny!”  His disappointment was written all over his little face.  Apparently he was under the assumption that if we paid for the program we would step onto the scale and instantly becomes as slim as super models.  If only the world worked the way six year olds thought it should!  That would be so awesome!  As the supportive friend I of course broke into fits of laughter, but he wasn’t done with me yet.  His mom bustled the little monkey downstairs to the grocery store to get a Popsicle while I paid for my program saving me from getting the same response when I got off of the scale.  I was not able to get down the stairs on my own because of the muscle weakness so I took the elevator down to the main floor after my first weigh in.  When the doors opened I was greeted by this same, wonderfully opinionated and honest child who stared at me open mouthed and then exclaimed loudly “WHAT????  ARE YOU BEING LAZY????  I THOUGHT WE WERE HERE TO LOSE WEIGHT!”  And suddenly we had ourselves an overly aggressive, opinionated and short little personal trainer that accompanies us to our meetings and gives his approval over how much weight we are losing.  In his defence he is also very supportive and so happy with every pound we lose and sticker we achieve as if it is his own little success as he keeps us on our path to healthier eating.  Although I did tell him that if he didn’t tone it down I would eat his popsicles which quickly quieted him up as he knew that I would do it too.  I never lie to children!

As of this tonight I am down 8 pounds so screw you Prednisone!  I already regret saying that out loud as I fear that this is a long battle that I will have to face and I am certain that some failures along the way will be inevitable.  Frack I am so hungry!  But so thankful for a supportive friend and my own little personal trainer!

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About Me

A hilarious view of life with multiple autoimmune disease and chronic illness. Lupus, Dermatomyositis, Myositis, Alopecia, Raynaud's Syndrome, Sjogren's Disease, Depression & Anxiety. I have it all and have learned to not only accept what come my way but to see the humour in all that life has to offer. If you know someone struggling with chronic illness please refer them to this blog. My hope is to brighten the days of those who need it the most and give hope that there is still a beautiful life to live even if it may be a little bit broken!

Stay Connected

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