Please Pray To The Insurance Gods For Me Tonight!
- March 23, 2017
- Theresa Bertuzzi
Oh my lord. Visited my Rheumatologist today and the hair loss is a bad sign. I am feeling so much stronger but the hair loss, in addition to the fact that my rash and muscle weakness returns the week before I am due for my IVIG infusions, means that my medication is not working. I am not going into remission and the Prednisone was just masking the symptoms. Crap! I thought that I was doing so much better. Not a really big problem, it just means that they have to pull out the big guns now and I need to start Rituxan infusions in addition to the IVIG infusions. I am fine with trying some new infusions and I am even ok with the additional time sitting at the hospital hooked up to IV’s but when she dropped the price of these infusions I almost passed out. Apparently I will need 4 or 5 treatments in the first couple of months, followed by a treatment every six months for the rest of my life and the cost is, drum roll please, $10,000.00 for each treatment. Please be covered by OHIP, Please be covered by OHIP!!!!…. NOPE!!!! So after the initial who knows how many thousands of dollars for the first two months, I am looking at $20,000.00 a year in treatments for the rest of my life. AGHHHHHH!!!!! I am hoping, praying and most likely begging that the majority of this will be covered by my medical insurance through work. Thank goodness that Danny and I both have coverage. I just have to wait now and see how much of it they will cover and for how long. So I am asking everyone I know to please pray to the insurance gods for me tonight and keep your fingers crossed that this is going to be covered. If not….. Well I am really not sure what will happen if it isn’t but best not to go there until it happens. No point worrying needlessly since it may very well be covered. Ok, that’s a load of hooey as I am very worried!!!! I really hope that the insurance gets back to me quickly and lets me know so I can breath a little easier. Who in the world can afford $20,000.00 a year in medication? What is wrong with the drug companies who set prices this high? I actually know people on the support group I am on who could not get coverage for this drug and have died as a result. Just three months ago one woman passed away from heart failure while fighting to be approved for coverage. She was only in her forties. It was so sad. I know that will not be my fate as Danny and I would work three jobs in order to pay for my medication but I am really hoping that we won’t have to. So fingers crossed everyone and please send a prayer out there for my family tonight and throw some prayers out there for everyone sick without any coverage as they are all in a way worse spot than I am in. This has been such an eye opener for me. No bright side or positive life posts tonight. Off to distract myself with a bath and a book. I already ate myself into a frenzy when I broke into my best friends cupboard and ate all of her Crunch a Munch while checking in on her cat while she is on vacation. Sorry but it had to be done! I owe you a new box, unless I don’t get coverage, then the box is on you. LOL XOX