About Me

A hilarious view of life with multiple autoimmune disease and chronic illness. Lupus, Dermatomyositis, Myositis, Alopecia, Raynaud's Syndrome, Sjogren's Disease, Depression & Anxiety. I have it all and have learned to not only accept what come my way but to see the humour in all that life has to offer. If you know someone struggling with chronic illness please refer them to this blog. My hope is to brighten the days of those who need it the most and give hope that there is still a beautiful life to live even if it may be a little bit broken!

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We Lit Up The Capital! Literally!

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Last night Brigida, Danny and I took the kids to see Light up the Capital at Parliament Hill.  Brigida, Diane and I went last year for the first time with the manager from our Tiny Hoppers in Jeddah, Saudi Arabia who was down for training.  It was so beautiful with the lights, fireworks, carolers and video display across the Parliament buildings.  It was one of those moments when you truly felt blessed to be Canadian and live in this amazing country where we can freely and safely mingle with thousands of other Canadians on the grounds of the parliament buildings.  For goodness sake, we even all do yoga on the lawns, is there anywhere else in the world that is so safe that you can do that?  Our Prime Minister is even there amongst us enjoying the show with the rest of us and as you glanced around the police force were having just as much fun smiling and helping to pass out candles to everyone for the candlelight singing.  We all had tears in our eyes and were so proud and we said that we all had to come back next year and bring the children because they would love it and it would be such a special memory for them.  Ba ha ha!!!  We had that sappy mommy illusion that the children would cuddle with us while we all sang carols and then their little, twinkling eyes would light up at the sight of the show, lights and fireworks.  They would be awe struck by the beauty of the night and we would point out what a special place Canada is to live and how lucky we are.  Then we would go home to hot chocolate and snuggly PJ’s for sweet dreams of our special night.  What were we thinking???

The evening of course started with my trying to get the kids gathered up and bundled up to go downtown in the wintery weather.  “Do I have to wear my mitts?”  “I can’t find my hat” “I am not wearing snow pants!”  “Well he isn’t wearing his snow pants!”  “Dad is hiding in the bathroom, if he’s not going I’m not going”  “Benny’s in the bathroom now, he saw dad and now he thinks he can do it too” “Do we really have to go?”  “Why can’t we bring the dog?”  “Well we would all want to go if the dog got to go.”  And… we were off to pick up Brigida and the twins.  We all decided to squish into one car so Brigida had to squish in between the two car seats which soon erupted into a wrestling match as everyone tried to help wrestle three parkas into a really tight space.  I got whapped in the head by a flying purse as Brigida tossed it at me yelling “protect my Louis!” as she flailed about trying to squeeze in and Danny had to bear hug her to get her all buckled in.  By the time Danny got in back in the driver’s seat he turned to me and said “you know if it is too squishy I can opt out and stay home I really don’t mind…”  I wanted to sock him one!  As we drove there the only one interested in hearing about where we were going was the sweet female six year old twin whom I will affectionately refer to as Twin # 1.  Twin # 2 will not have the honor of being called Twin # 1 because he tried to light too many people on fire at Parliament hill and thus will get the ranking of Twin # 2.  Twin # 1 asked all of the right questions and was so excited to be going.  My own children were much happier to be going now that the twins were on board because my children think that Twin # 2 is hilarious and Twin # 1 is so cute.

We parked at the Chateau Laurier Hotel and stomped through their beautiful lobby in our boots and snow clothes like a heard of wild animals.  The children were pretty excited and pointed out all of the sights at full blast.  “Hey it smells like fish in here!”  “Are you sure this is a nice hotel?”  “Mmmmm  I love to eat muscles!”  “That is so gross!”  “Why are all of their trees fake?”  “Do they have a pool?”  “Why is everyone in here dressed so nicely are they all rich?” And… we headed out the front doors and walked up to the Parliament Buildings.  We squeezed into the crowd and made our way over to get our candles.  In hind sight we maybe should have just told them that they had run out of candles.  We passed each of them a candle and then spent 15 minutes lighting and relighting candles as both Benny and Twin # 2 thought it would be hilarious to blow the candles out as we lit them.  By the time we worked our way into the crowd poor little Twin # 1 turned to us and said “maybe you can hold my candle, I am not feeling very safe with this.”  Little did she know was that she was the one who was the most safe with the candle as she was the most responsible one in the group and she was in far more danger without her own candle to use to fend off Twin # 2 who quickly realized that he could not only make his sister scream but get a reaction out of all of us by holding the candle as near as he could to his sister’s hood without actually touching it.  He must have almost lit her on fire at least a dozen times and she ended up spending the night with me asking over and over again if she should stop, drop and roll if she started going up into flames.  I reassured her that I was watching and would put her out if she started on fire.  She asked me what would happen if I didn’t notice and I explained that if he actually lit her on fire she would go up like a torch and we would all see it.  Not the best choice of explanation as she was now practicing her rolling motion and completely missing everything happening practicing for her imminent explosion into flames.  I swear she developed a tick before the end of the night.  Twin # 2 though was having a great old time.  He was rocking out and dancing to the carolers which was funny because he was hip hop dancing and they were singing Silent Night.  He had tons of room to dance too because whenever anyone tried to encroach on his space he would hold his little candle as close as he could to their coat until that person noticed and headed the hell out of there.  My own boys were not watching what was happening at all but were entranced by Twin # 2’s candle dance and were trying to crowd people into his direction to see if he would light them on fire.  They of course were already bored with their own candles so they had passed them to me and I was busy juggling them while trying to use my camera to capture this magical and special moment.

Finally after much complaining, whining and reminders that they had really not wanted to come in the first place, the light show came on and Brigida and I were so excited for them to see it.  We waited for that special moment to happen and pointed out again and again how beautiful it was.  “Is this it????”  “The light show at Disney is better you know”  “How long is this going to last?”  “He almost set me on fire again!”  “After this I am going to want you to make me some spaghetti because you didn’t feed me enough supper,”  “hey let’s get McDonalds because I am thirsty too and need a drink” “Are you sure I’m not on fire Teeta because I feel hot”  “These candles stink like Roses” “Why wouldn’t they pick a different smell.”  The only one interested in the whole show was Bryson who began to loudly explain to us the mechanics and technical details of how this show was put on.  I mean every detail.  By the end of the show Brigida turned to me and said “Let’s get the hell out of here!”  LOL.

So we headed back to the car for the wrestling match to get back in and then listened to the whining of all five children who were hungry and wanted drinks.  Twin # 2 placing a full order for spaghetti and homemade sauce when he got home which his mother quickly informed him was so not happening. We asked everyone if they liked the show which was greeted by silence followed by Twin # 2 saying “Not really,” which was immediately followed by hysterical laughter from my three children who were obviously in complete agreement with them.  I asked if they wanted to go again next year though and they were all on board so it couldn’t have been that bad.  So all in all, not the emotionally, sweet night that we were hoping for but, I know you will think there is something wrong with me but, I enjoyed this even more than the year before.  The chaos and hilarity of this adventure was way more fun and real than an emotionally perfect night and the memories of this evening will have me laughing for years to come and I am so, so relieved that everyone made it home without being lit on fire.

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About Me

A hilarious view of life with multiple autoimmune disease and chronic illness. Lupus, Dermatomyositis, Myositis, Alopecia, Raynaud's Syndrome, Sjogren's Disease, Depression & Anxiety. I have it all and have learned to not only accept what come my way but to see the humour in all that life has to offer. If you know someone struggling with chronic illness please refer them to this blog. My hope is to brighten the days of those who need it the most and give hope that there is still a beautiful life to live even if it may be a little bit broken!

Stay Connected

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